What makes a good death? How do you alleviate pain appropriately at end of life stage? What if it was your child suffering and death was to be the ultimate outcome, what would you do?
These are questions that parents of profoundly disabled children with life limiting illness or injury must inevitably confront. This ABC Background Briefing story and associated podcast provides some very interesting and thought provoking approaches to the question of what makes a good death.
Is a good death one without suffering? Is it one were suffering is minimised? Is it one that meets the direct needs of the child through palliation? Who has the right to speak for children with profound disabilities who are unable to speak of their own suffering?
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